DIGEORGE SYNDROME, VCFS, 22Q 11.2 DELETION, DOWN SYNDROME, DYSLEXIA

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DIGEORGE SYNDROME/VCFS/22Q 11.2 DELETION

 

22Q and You Center
Resource for families of children with 22Q; Children’s Hospital of Philadelphia.
215-590-2920
www.chop.edu/centers-programs/22q-and-you-center

The 22Q Deletion Center at Nationwide Children’s Hospital
Resources, conferences, clinical research and publications for children with 22q 11.2 Deletion Syndrome.
www.nationwidechildrens
.org/22q-deletion-syndrome-center

22Q Family Foundation
National alliance of parents and professionals providing information, awareness, resources and educational consulting.
725 Clubhouse Dr.
Aptos, CA 95003
831-200-4227
www.22qfamilyfoundation.org

The International 22q 11.2 Foundation, Inc.
Information, family support and resources.
877-739-1849
www.22q.org

Massachusetts General Hospital 22Q11.2 Clinic and Resource List
Provides expert, evidence-based care, research, resources and healthcare guidelines for patients with DiGeorge Syndrome, Velo-Cardio-Facial Syndrome, and Conotruncal Anomaly Face Syndrome, and others.
617-726-1561
www.massgeneral.org/children/services/treatmentprograms
.aspx?id=1815

 

DOWN SYNDROME

 

Down Syndrome Association (DSA) of San Diego
Family Support Network across the lifespan: information, resources and referral services, education and social events, advocacy and public policy initiatives. Specialized services: peer/parent support, pre/postnatal consults, family support groups (English/Spanish), social groups and lending library.
9245 Sky Park Ct. #130
SD, 92123
619-594-7389
www.dsasdonline.org

DS Action
San Diego based organization dedicated to helping children with Down Syndrome.
619-694-4615
www.dsaction.com

National Down Syndrome Society
Education, research and advocacy for those with Down Syndrome and their families.
800-221-4602
www.ndss.org

Gigi’s Playhouse Down Syndrome Achievement Center
Provides free educational and therapeutic-based programing to individuals with Down Syndrome and support for their families.
Christ Lutheran Church
4761 Cass St., SD, 92109
619-729-6166
www.gigisplayhouse.org/sandiego

Pediatric Down Syndrome Center
Serves as a resource to medical professionals and strengthens the social network for families, improving the consistency of care for children under 5 with Down Syndrome. Offers coordinated assessments, connections to resources, education and advocacy.
7920 Frost St. #200
SD, 92123
858-966-5840



www.rchsd.org/programs-services/down-syndrome-center/

 

DYSLEXIA

 

The International Dyslexia Association
Tools, info and resources for those with Dyslexia.
San Diego Branch
12285 Oak Knoll Rd.
Poway, CA  92064
619-295-3722
www.dyslexiasd.org

Learning Ally
Serves students and lifelong learners who cannot read standard print due to blindness, visual impairment, Dyslexia, or other learning disabilities by providing more than 65,000 digitally recorded textbooks and literature titles.
800-221-4792
www.learningally.org

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