Flourishing Families - Full of great and important resources for families with Special Needs. Read it.

EPILEPSY, FRAGILE X, GUILLAIN-BARRE SYNDROME, HIV/AIDS, JACOBSEN SYNDROME/11Q, LUPUS

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EPILEPSY

Epilepsy Foundation of San Diego
Offers parent support group, children’s expressive art group and other resources.
2055 El Cajon Blvd., SD, 92104
619-296-0161; 800-332-1000
www.epilepsysandiego.org

Talk About It!
Website dedicated to understanding that Epilepsy is a naturally occurring disability. Resources for coping, medication information and support are discussed in a matter-of-fact manner.
www.talkaboutit.org

FRAGILE X

Fragile X Center of San Diego
Provides information for families and professionals including family support, improving awareness of Fragile X, promoting research and increasing identification of the syndrome.
877-300-7143
Spanish: 760-434-6290

FRAXA Research Foundation
Nonprofit organization run by parents whose mission is to find treatments and a cure for Fragile X by funding the most promising research.
978-462-1866
www.fraxa.org

GUILLAIN-BARRE SYNDROME
Guillain-Barre Syndrome Foundation International (GBS/CIDP)
866-224-3301
www.gbs-cidp.org

HIV/AIDS

Christie’s Place
HIV/AIDS support center provides comprehensive education, support and advocacy to women, children and families impacted by HIV/AIDS.
2440 Third Ave., SD, 92101
619-702-4186
www.christiesplace.org

JACOBSEN SYNDROME/11Q
11Q Research and Resource Group
678-267-3586
www.11qusa.org
11qusa@gmail.com

 

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