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EPILEPSY
Epilepsy Foundation of San Diego
Parent support group, children’s expressive art group and other resources.
2055 El Cajon Blvd.,
SD, 92104
619-296-0161
www.epilepsysandiego.org
Epilepsy and My Child Toolkit
The National Center for Project Access offers helpful information to families with a newly diagnosed child.
www.aap.org/en-us/Documents/Sharing_the_Diagnosis.pdf
Talk About It!
Website dedicated to understanding that Epilepsy is a naturally occurring disability. Resources for coping, medication information and support are discussed in a matter-of-fact manner.
www.talkaboutit.org
FRAGILE X
Fragile X Center of San Diego
Provides information for families and professionals including support, improving awareness of Fragile X, promoting research and increasing identification of the syndrome.
877-300-7143
Spanish: 760-434-6290
www.fragilexsandiego.org
FRAXA Research Foundation
Nonprofit organization run by parents whose mission is to find treatments and a cure for Fragile X by funding the most promising research.
978-462-1866
www.fraxa.org
National Fragile X Foundation
Online access to a community support network and research consortium.
www.fragilex.org
Our Fragile X World
Online resources for families, researchers and practitioners.
www.ourfragilexworld.org
GUILLAIN-BARRE SYNDROME
Guillain-Barre Syndrome Foundation International (GBS/CIDP)
Nonprofit that brings together professionals and families for research and support.
866-224-3301
www.gbs-cidp.org
LUPUS
Lupus Foundation of America
National center for research and advocacy for those with Lupus.
800-558-0121
www.lupus.org
Lupus Foundation of Southern California
Offers support groups, resources and insurance advice for those with Lupus.
4699 Murphy Canyon Rd.
SD, 92123
858-278-2788
www.lupussandiego.com