EPILEPSY, FRAGILE X, GUILLAIN-BARRE SYNDROME, JACOBSEN SYNDROME/11Q, LUPUS

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EPILEPSY

 

Epilepsy Foundation of San Diego
Offers parent support group, children’s expressive art group and other resources.
2055 El Cajon Blvd.
SD, 92104
619-296-0161
www.epilepsysandiego.org

Talk About It!
Website dedicated to understanding that Epilepsy is a naturally occurring disability. Resources for coping, medication information and support are discussed in a matter-of-fact manner.
www.talkaboutit.org

 

FRAGILE X

 

Fragile X Center of San Diego
Provides information for families and professionals including family support, improving awareness of Fragile X, promoting research and increasing identification of the syndrome.
877-300-7143
Spanish: 760-434-6290
www.fragilexsandiego.org

FRAXA Research Foundation
Nonprofit organization run by parents whose mission is to find treatments and a cure for Fragile X by funding the most promising research.
978-462-1866
www.fraxa.org

 

GUILLAIN-BARRE SYNDROME

Guillain-Barre Syndrome Foundation International (GBS/CIDP)
Nonprofit that brings together professionals and families for research, understanding and support.
866-224-3301
www.gbs-cidp.org

 

LUPUS

Lupus Foundation of America, Inc.
National center for research and advocacy for those with Lupus.
800-558-0121
www.lupus.org

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