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9pMinus/Alfi’s Syndrome: Chromosome 9pMinus Network
Website with resources for individuals with Monosomy 9p.
Angelman Syndrome Foundation
Burn Institute San Diego
8825 Aero Dr. #200
One of the leading rare and genetic disease patient advocacy nonprofit organizations in the world. Promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon. Centered on increasing rare disease awareness, public and physician education, and supporting research initiatives to find treatments and cures.
Aliso Viejo, CA
International Bipolar Foundation
Advances research toward the elimination of Bipolar Disorder, provides and enhances care, resources and support services and works to erase the stigma associated with mental illness through education.
8895 Town Centre Dr. #105-360
International Foundation for CDKL5 Research
International Rett Syndrome Foundation
Funds research for treatments and a cure for Rett Syndrome while enhancing the overall quality of life for those living with it by providing information, programs and services.
National Organization for Rare Disorders
Federation of voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them. Committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.
Prader-Willi Syndrome Association (PWSA) USA
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
Stickler Involved People
Turner Syndrome Society of the United States
The rare chromosome disorder support group.